Yesterday my husband and I took our 16 month old daughter to see a pulmonary specialists. For 9 months now we have been battling her chronic cough and horrible breathing. Her ped has told us not to worry about it and keep giving her treatments that our used for asthma. After 6 months of nebulizer and inhalers (without ANY improvement) we finally set up an appointment to see a specialists.
As we are sitting in the room waiting for the doctor I spied a poster on the wall. The poster was about Cystic Fibrosis. I let that sink in awhile before I turned to my husband and say, "Huh, never thought of that one." I knew what Cystic Fibrosis was and to be honest, I pushed it aside and said "Nah, it can't be that."
When the doctor was done with his examination, (Which took awhile because of Addie's screaming tantrums, thank GOD for suckers!) the doctor asks if our heritage descended from Europe. Yup, you know us white folks usually come from there. The doctor goes on and tells us that there is a genetic disease called Cystic Fibrosis
.....................stop..................
...........right there................
.................I just got kicked in the balls...............
My daughter? Have a disease that makes her LIFE EXPECTANCY SHORTER
After I was able to start my heart again and make sure my testicles, which I never knew I had, were back where they should be, I was able to hear some other words from the doctor's mouth like, "shows symptoms" and "I don't think so"....wait....you don't think so? A specialist who has worked with CF toddlers before says "I don't thinks so" when it comes to my daughter and that disease. THERE IS HOPE! I won't go in detail about the drive home, or the long night of no sleep, and the emotional morning that occured today.....let's just say I'm emotionally exhausted.
For now we are continuing the nebulizer twice a day with some new medicine from that doctor. Hopefully this will make her better. More than likely he is going to test her. I guess it's a test that only takes 45 minutes. Can you imagine? Waiting for that kind of news? But I guess I will think about that when the time comes.
Tuesday, September 15, 2009
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